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International Classification of Functioning, Disability and Health (ICF)

PI: Susan Charlifue, PhD
Funded by: Swiss Paraplegic Foundation
Dates: 2006 – 2009
Contact: Susan Charlifue – Susie@craighospital.org 303 789 8306

An important basis for the optimal acute and long-term management of spinal cord injury (SCI) is an in-depth understanding, systematic consideration and sound measurement of the impact of SCI on health and health-related domains. The International Classification of Functioning, Disability and Health (ICF) offers a framework for such a comprehensive understanding of the components of health. The ICF framework is based on the bio-psycho-social model covering functioning and disability with its components Body Structures, Body Functions, Activities and Participation as well as Personal and Environmental Factors. Since its classification with more than 1400 categories can serve as a reference but is not applicable in clinical practice, tools such as ICF Core Sets are needed to make the ICF useful for medicine.

The objective of the project is the development of ICF Core Sets for SCI in cooperation between the ICF Research Branch of the Collaboration Centre of the Family of International Classifications (DIMDI, Germany) at the Ludwig-Maximilians-University in Munich, the CAS (Classification, Assessment and Surveys) team and the DAR (Disability and Rehabilitation) team at WHO, the International Spinal Cord Society (ISCoS) and International Society for Physical and Rehabilitation Medicine (ISPRM) and partner institutions across the world.

The ICF Core Sets for SCI will be defined at an international ICF Core Set Consensus Conference which will integrate evidence from a) an empirical study, b) a systematic review of outcomes and measures used in SCI research, c) a Delphi exercise involving experts, and d) focus groups and semi-structured individual interviews with people with SCI in different world regions.